lobular breast cancer

Four Years…Cancerversary!

Today marks four years since I woke up from surgery, felt the port in my chest, and was told that my lobular breast cancer had returned and that it had metastasized.

I'm certainly not the scared, sad, emotional person I was then. I'm no longer the woman who spent hours Googling everything (stupid, stupid girl!) and believed the first response that told me I had only two or three months to live.

Over these past four years, an extraordinary community of old friends and new friends has carried me. They supported me emotionally and financially. They taught me, mentored me, trained me, and showed me that while metastatic breast cancer changes your life, it doesn't have to define it.

Today, I walk with this disease, grateful for every day and eager to offer what was so generously given to me. A shoulder to lean on, practical advice, friendship, resources, and hope to anyone newly diagnosed. Through volunteering with organizations that support people living with metastatic breast cancer, my knowledge continues to grow every day, and I love being able to pass those resources on to friends and strangers alike.

Four years after those terrifying days and weeks, I've realized this is one of the ways I can give back, by sharing the same kindness, love, and knowledge that others shared with me.

So today, of all days, I had a haircut appointment with a wonderful young woman who was diagnosed with metastatic breast cancer just a year ago.

Needless to say, hair was the least important part of our conversation.

We talked about the loneliness. About how people around her are often in denial because she “looks so good.” About the lack of reliable emotional, financial, and educational resources. About finding support groups that meet both in person and online. And, of course, about the endless well-meaning comments from people who think all cancers are the same or know someone whose second cousin’s neighbor “cured” cancer by the most insane things that quacks of every variety can come up with.

In so many words, I just sat there in that salon chair, heartbroken. Then, I climbed onto my horse.

Information was shared. Tears were shed. Hugs were exchanged and held as neither one of us wanted to let go.

As strange as it may sound, helping this young woman was the greatest gift I could have received on my fourth anniversary. It reminded me how far I've come. It allowed me to pass forward the love that has been extended to me.

I will forever be grateful to Jim, to my family, and to every one of you who has walked this path beside me. Your kindness, encouragement, prayers, laughter, and friendship have carried me farther than you will ever know.

I continue to believe in science. I continue to believe in hope. And I hope I can keep reporting back with stories about the remarkable people I meet on this journey.

If you know someone living with cancer…a friend, a neighbor, a coworker, a writer, a family member, or even someone you barely know, reach out. Support them. Show up. Listen. Kindness doesn’t require expertise. It simply requires the commitment to be there for one another.

By the way, Jim and I will be volunteering with Little Pink Houses of Hope in September, and later that month I'll be serving as a patient advocate at the Lobular Breast Cancer Alliance conference in San Francisco. Can’t wait.

Love you all. I am so very grateful for every one of you.

New Line of Treatment

Today was one of those days when I have a few choice words for lobular breast cancer—the lack of research, lack of accurate imaging, and lack of real understanding.

Who am I kidding? I have those choice words every day.

But today is also a day when I’m profoundly grateful to be under the care of one of the most knowledgeable and compassionate oncologists practicing medicine.

Three and a half years after my metastatic diagnosis, I learned today that my third line of treatment (a clinical trial) is no longer effective. My progression was caught only because my oncologist knows and studies this disease. She read my scans herself and listened carefully to my symptoms.

I am grateful to her beyond words.

Next week, I begin my fourth line of treatment. Here’s to hoping and praying that Xeloda and I build a long and lasting friendship.

I appreciate all your good thoughts and prayers.

And here’s another shout-out: if you’re able, please consider donating to lobular breast cancer research. And…Stage IV needs more.

Nikoo's New Interview - October 2025

In this interview I’m sharing something deeply personal—my cancer journey.

It hasn’t been easy. There have been dark days, times of uncertainty, moments of fear… but also sparks of hope, resilience, and immense gratitude for every single one of you who’s walked this path with me.

In this video, I open up about what I’ve been through. The struggles, the breakthroughs, and the lessons I’ve learned along the way. My hope is that by being vulnerable, I can help others feel less alone.

If you or someone you love is facing something similar, this is for you. You are stronger than you think. You are not alone.

Thank you to everyone who’s sent love, prayers, messages, and encouragement. You lift me up every single day.

Please feel free to watch, share, and comment. Your support means the world.

Celebrating a 'cancerversary'

From Jim—

We’re celebrating a #cancerversary in our house. As you know, three years ago, Nikoo was diagnosed with metastatic breast cancer, twenty years after her original bout with cancer.

Everyone deals with cancer in their own way, and no one should ever feel that their response is ever wrong or lacking. I can only speak to the way Nikoo has responded, and what she’s done since her metastatic diagnosis demonstrates exactly who she is. What I have seen is that this woman—who I’ve been blessed to love for 45 years—chose not to hide herself away or give up on life.

What Nikoo has done is to dedicate herself to helping other women who often need support and information and love as they travel the frightening and isolating journey of the cancer patient.

I can’t tell you how many hours every day she spends educating herself and building community and connecting. She participates in webinars, reads medical articles, and deepens her understanding of cancer, genetics, nutrition, and choices. But most important of all, she emails texts and calls her ‘sisters’. Constantly.

She does this with the conscious goal of helping women learn about their specific disease and possible treatment, and to bolster the courage to advocate for themselves. And when she loses a friend who ‘crosses over’, she weeps for them and for (and often with) the families and loved ones they leave behind.

Nikoo is truly an angel and a gift to me and to her family and to all her #mbc and her lobular breast cancer sisters.

I’m hopeful for many, many more cancerversaries, and I thank God for every blessed day I get to spend with her.