New Line of Treatment

Today was one of those days when I have a few choice words for lobular breast cancer—the lack of research, lack of accurate imaging, and lack of real understanding.

Who am I kidding? I have those choice words every day.

But today is also a day when I’m profoundly grateful to be under the care of one of the most knowledgeable and compassionate oncologists practicing medicine.

Three and a half years after my metastatic diagnosis, I learned today that my third line of treatment (a clinical trial) is no longer effective. My progression was caught only because my oncologist knows and studies this disease. She read my scans herself and listened carefully to my symptoms.

I am grateful to her beyond words.

Next week, I begin my fourth line of treatment. Here’s to hoping and praying that Xeloda and I build a long and lasting friendship.

I appreciate all your good thoughts and prayers.

And here’s another shout-out: if you’re able, please consider donating to lobular breast cancer research. And…Stage IV needs more.

Nikoo's New Interview - October 2025

In this interview I’m sharing something deeply personal—my cancer journey.

It hasn’t been easy. There have been dark days, times of uncertainty, moments of fear… but also sparks of hope, resilience, and immense gratitude for every single one of you who’s walked this path with me.

In this video, I open up about what I’ve been through. The struggles, the breakthroughs, and the lessons I’ve learned along the way. My hope is that by being vulnerable, I can help others feel less alone.

If you or someone you love is facing something similar, this is for you. You are stronger than you think. You are not alone.

Thank you to everyone who’s sent love, prayers, messages, and encouragement. You lift me up every single day.

Please feel free to watch, share, and comment. Your support means the world.

Celebrating a 'cancerversary'

From Jim—

We’re celebrating a #cancerversary in our house. As you know, three years ago, Nikoo was diagnosed with metastatic breast cancer, twenty years after her original bout with cancer.

Everyone deals with cancer in their own way, and no one should ever feel that their response is ever wrong or lacking. I can only speak to the way Nikoo has responded, and what she’s done since her metastatic diagnosis demonstrates exactly who she is. What I have seen is that this woman—who I’ve been blessed to love for 45 years—chose not to hide herself away or give up on life.

What Nikoo has done is to dedicate herself to helping other women who often need support and information and love as they travel the frightening and isolating journey of the cancer patient.

I can’t tell you how many hours every day she spends educating herself and building community and connecting. She participates in webinars, reads medical articles, and deepens her understanding of cancer, genetics, nutrition, and choices. But most important of all, she emails texts and calls her ‘sisters’. Constantly.

She does this with the conscious goal of helping women learn about their specific disease and possible treatment, and to bolster the courage to advocate for themselves. And when she loses a friend who ‘crosses over’, she weeps for them and for (and often with) the families and loved ones they leave behind.

Nikoo is truly an angel and a gift to me and to her family and to all her #mbc and her lobular breast cancer sisters.

I’m hopeful for many, many more cancerversaries, and I thank God for every blessed day I get to spend with her.