June 1st
Long post...
What have I (and Jim) been doing since March 16th?
· Ultrasound ABDOMEN
· CT UROGRAM W WO CONTRAST
· Surgery Stent
· PET / CT SKULL TO THIGH
· Surgery biopsy and another stent
· CANCER ANTIGEN blood tests
· CT CHEST AND ABDOMEN AND PELVIS W/ CONTRAST
· BONE SCAN WHOLE BODY
· Today: ULTRASOUND OVARIES
· Scheduled over the next two weeks:
· MRI SPINE
· Ultrasound Paracentesis
· another surgery to be scheduled.
· Countless blood tests...
Do we have results? no. Do we know what is wrong? No. Each test is contradictory and suspicious enough to warrant more tests.
In so many words, I'm NOT normal. Well, Jim could have told my medical team that when we got started.
Nineteen years ago, my breast cancer was hiding in a lymph node under my arm. A year later, colon cancer was brewing while I was still seven years away from my first colonoscopy. But thanks to a great medical team, I am alive today. So, the team of doctors I'm working with now are dedicated and searching and not giving up.
And another reason why they're pushing so hard is that my oncologist in Connecticut ordered some genomic cancer testing (state-of-the-art four years ago) when I was moving to California, and the results showed where I had gene mutations. So, this gives them more reason.
Yes, there're days when I feel like a pin cushion, but every day, every hour, I am thankful to my family, to you, to the higher powers smiling down on us, and to the team of doctors and nurses and schedulers who are superstars.
Love you all.
Jim says there's a stretch of beach he's taking me to after this afternoon's doctor appointment.
We’ve been resisting this, but some of our friends have been pressing us to let them help. Medical costs are gradually mounting, so…if you care to make a donation, our PayPal address is
NikooandJim@gmail.com